Purple Day.

Posted by Danica Quabba on

In honour of purple day I thought I would share a little about my first experience with focal seizures. Most of you will automatically think it was when Abigail was diagnosed but it wasn’t!

I’m a little hazey on dates but I’m 2012 my grandad Ross had a fall resulting in multiple brain haemorrhages. He was transferred from Ingham to Townsville hospital and we were told the prognosis wasn’t good. After finishing up work at my job at the time I spent from 7am to 7pm at his bedside spending as much time as I could in his presence this went on for 3 months in total. I would ask the nurses and doctors so many questions and the cafeteria lady new me so well I got staff discount 😅.

I remember one afternoon as I sat beside his bedside, he was unconscious at this point. I saw his eyes open slightly and his eyes and head started twitching and pulling to the left side and then it would stop. This continued to happen and I called the nurse saying I think he is having a seizure. I was dismissed until I demanded the neurologist, he was thankful I detected the change and ordered emergency medication to be given. The Dr told us that traumatic brain injuries have the ability to cause ongoing seizures and that this may continue if he was to recover.

The next morning I arrived at the hospital to have a nurse inform me he had taken a turn and was in ICU. As I was buzzed through it was overwhelming. He was hooked up to an EEG and had so many tubes. At this point he was statusing multiple times in a day and was started on 2 anti epileptic drugs. At this point I was told to say goodbye before I left that night.

I have never been an overly religious person but that night I prayed so hard, I have never felt so lost. Most of you who know me know that my grandad is my world, he is my best friend and I cherish every minute with him.

The next day I went back to the ICU and no word of a lie he was sitting up in bed AWAKE!

The next two months were spent in rehabilitation learning how to walk, feed himself and just to live independently. There were seizures on occasion but he was able to become seizure free with medication and has now successfully weaned off them.

Nonno is fortunate to not remember all of this time in his life and he always asks me to tell him what it was like. In a way this experience primed me to care for Abigail. To be able to say I could care for my grandfather in his most vulnerable time is an absolute privilege.

Lastly I want to say that the seizures grandad experience and those that Abigail do although they may look similar the difference is Abigail doesn’t get to outgrow these.

I would honestly never wish the experiences I have been through on anyone. Without these experiences I wouldn’t be who I am today and be striving to be the mum I am to Abigail and the nurse I will be to many others.

This blog shows just how quickly life can change 💜 Having these experiences and having Epilepsy Queensland Inc. supporting Abigail through her journey is relieving.

The Medicalised Mumma x

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