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Three Pieces Of Hope.

Who would think that these three little items have the ability to save my daughters life.

This is Abigails emergency medication called midazolam. It is from the benzodiazepine family and works on the brain by slowing down the processes. This has the ability to stop a status seizure. We only ever administer this drug if she has a seizure over 5 minutes that doesn’t self resolve or more than 3 seizures in an hour.

The dosage she has is 5mg this is double the dose of what an ambulance officer would give her. We found out early on that the smaller dose didn’t help so her dosage was increased.

The little vile of medication is drawn up into the syringe and the triangular piece screwed on. This turns the medication into a nasal spray style administration. We then place it at the entrance of her nostril pointing outwards and administer half a ml per nostril. Generally this will terminate the seizure within 30 seconds.

Sometimes Abigail is conscious for this process and will fight us other times she is completely unconscious.

I can’t explain how hard it is to watch your child seize for 5 minutes or more. Trying to hold yourself together while drawing up the medication in preparation each second praying the seizure self terminates. During 2018 I would be doing this process multiple times a week, spending countless nights in ED.

I would not wish this life on my worst enemy. If I could take all this away for our little family I would but unfortunately this is our reality.

Stay tuned for a video demo this week.

The Medicalised Mumma x

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